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Brain Injury Agencies/Websites
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Brain Injury Association |
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Information on brain injury, research, conferences, publications, prevention and education, survivors' voice, assistive technologies, and information and referral.
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Phone: (800) 444-6443 |
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Live Oak |
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Non-profit organization dedicated to improving the quality of life of individuals with traumatic brain injuries or other cognitive disabilities through education and training. Provides a free resource pamphlet for families and individuals.
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HeadInjury.com |
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Provides information, education and support to foster self-advocacy and self-care in partnership with families and professionals. Provides information on brain injury, resources on doctors, rehabilitation facilities, lawyers, and resources to develop advocacy skills.
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Phone: (206)621-8558 |
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Perspectives Network |
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Focuses on "positive communication" between persons with brain injury, family members, caregivers, professionals, and friends of the injured in order to create positive changes and enhance public awareness of brain injury. Website includes a message board, frequently asked questions, articles, reference materials, resource lists, and more. Also includes a long list of recommended books and videos for families, survivors, teachers, attorneys, and professionals.
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TBI-NET |
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Website of Research and Training Center on Community Integration of Individuals with Traumatic Brain Injury. Purpose is to expand the knowledge of what works to help people with brain injury in living their lives. Includes articles, advice, and creative writing from survivors.
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National Resource Center for Traumatic Brain Injury |
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Provides relevant, practical information for professional, persons with brain injury, and family members. Includes intervention programs, books, assessment tools and identifies the special needs and problems of people with brain injury and their families.
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Rehabilitation Research center |
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Provides information, education, and support for the traumatic brain injured and spinal cord injured to improve the lives of individuals with disabilities. Also includes online resources, resource guides, educational materials, newsletter, and bulletin boards.
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www.tbichat.org |
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Website is a chat room for traumatic brain injury survivors and caregivers and includes pictures, stories, a message board, and more.
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Spinal Cord Injury Agencies/Websites
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Paralyzed Veteran's Association |
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A comprehensive website with information about spinal cord injury, resources for professionals, sports and recreation, research and education, and legislative issues.
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Rehabilitation Research Center |
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Provides information, education, and support for the traumatic brain injured and spinal cord injured to improve the lives of individuals with disabilities. Also includes online resources, resource guides, educational materials, newsletter, and bulletin boards.
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Spinal Cord Injury Information Network |
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Provides information and statistics about spinal cord injury, research, education and training, medical and psychological information including employment, sexuality issues, rehabilitation, family and relationships. It also lists disability organizations.
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Spinal Cord Injury Resource Center |
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This site provides a chat room, classifieds section, spinal cord information, books and information on common complications from spinal cord injury.
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Foundation for Spinal Cord Injury Prevention, Care, and Cure |
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A non profit educational group dedicated to the prevention, care and cure of spinal cord injury via public awareness, education and funding. Includes an information exchange forum for survivors and their families. Also has information on prevention, care of spinal cord injury, resources for caregivers and legal issues.
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Spinal Cord Injury, Information |
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This site covers information on spinal cord injury and diseases of the spine. It is a comprehensive site with links to books, adaptive technology, travel and leisure, top hospitals, disability communities, online chat and message boards, spinal cord injury organizations and more. It also has information about common medical issues associated with spinal cord injury, such as autonomic dysreflexia and skin care.
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Spinal Cord Injury Peer Information Library on Technology |
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This resource describes the assistive technology experiences of individuals with spinal cord injury from their own perspective. It includes personal stories of life with assistive devices, what works, consumer reviews of particular products, and idea exchanges.
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National Spinal Cord Injury Association |
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This site contains information on conferences and events related to spinal cord injury, information for people with new injuries, rehabilitation, and a resource center with an extensive list of issues related to spinal cord injury.
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Agencies/Websites for Disability Related Issues
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Caregiver Resource Centers |
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Funded by Area Agencies on Aging and Department of Mental Health in designated states only. Each state's Agency on Aging could serve as a resource for individuals with brain injury, and spinal cord injury over the age of 60 and would also be a good resource for locating any other agencies in that particular state that deal with brain injured individuals between the ages of 18-59. Agencies on Aging programs offer services that help older adults remain in the least restrictive environment by providing services such as meals-on-wheels, transportation, homemaker assistance, and information and referral.
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Disability Resources |
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Evaluates disability-related websites and provides links to the best sites on more than 300 topics and covers 50 states.
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Independent Living Centers |
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National center for information, training, research and technical assistance in independent living. Their goal is to expand the body of knowledge in independent living and improve the utilization of results of research programs and demonstration programs. They provide resource materials on legislation affecting health care and independent living, directories of independent living centers nationwide, handbooks, audiovisual materials, on-line discussion groups, and listings of publications.
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Address: 2323 South Shepherd, Ste. 1000, Houston, Texas 77019, 713/520-0232 |
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Job Accommodation Network |
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A free consulting service designed to increase the employability of people with disabilities by providing worksite accommodation solutions, technical assistance regarding disability legislation, and education about self-employment options. Information is for the disabled and the potential employer.
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Phone: (800)526-7234 |
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Amazon.com |
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Website to search for books on brain, stroke, and spinal cord injuries.
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